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What do you tell family members? Especially nosy inlaws?

estone posted Jan.20th, 2004, 11:28:24 am1/5
This is part of a discussion topic from the forum at www.autismweb.com. I thought that it might help get things started here.
estone posted Jan.20th, 2004, 11:29:20 am2/5
**Original post from Brian's mommy at www.autismweb.com**

Our son just turned three a week ago. We are waiting for the dx from the school system we have an IEP meeting set for Wednesday morning. He has some of the signs of autism, is speech delayed, very hyper. We have gotten alot of judgement from both sets our parents. One set lives here in GA with us. They don't know anything about the evaluations and the pure emotions we have had in dealing with this child. At Christmas we had him over at my husband's sister's house and all we got were 'looks' How do you break it to these people, when we find out the dx from the school system. I know that they have to figure something is wrong, and I know that they think we are hiding this from them, which we have until this point. Ideas? Thanks for reading this. Sheila
estone posted Jan.20th, 2004, 11:30:31 am3/5
**Original post from Christopher's mom at www.autismweb.com**

Personally,I think the best thing is the truth.be sure and get information,pamphlets,etc from the school district. The only way they can come to terms with having a "special child" in the family is to be fully informed. this is how we handled our sons DX. We are lucky and had family memebersdo their own research on it. that way they also knew how to handle Chris. Good luck! Everyone who has dealings with your child has to get through the denial! This is what will be best for your child! Thanks, Amy
estone posted Jan.20th, 2004, 11:32:32 am4/5
**Original post from Spencer's dad at www.autismweb.com**

I think it was a cycle with us. We had been saying something was wrong for over a year before we got the diagnosis. We felt the embarrasment of taking him into stores and seeing the looks from other parents telling us that we needed to learn how to control our son. Once the diagnosis was given, of course, we went through the depression of realizing that there really was something wrong and that it was a life long sentance. As the research progressed, we realized that a lot of the little cute nuances that we thought were play, turned out to be stimming. We hated it. Finally, we found some strength in seeing Spencer come around with therapy and Diet. Now that we have seen the boy that Spencer should have been all along, we feel empowered. Never before have we realized that we were doing the right thing. We love Spencer very much and we dare ANYONE (even nosy relatives) to tell us that we're doing something wrong. We've even realized that we would be very willing to tell such nosy relatives where to put if if they think we're wrong. God forbid we ever catch them feeding him something with Gluten. Ask anyone who has spent time on the diet and they will be able to tell you that you can see it almost immediately when he eats something he shouldn't. oops... sorry... got on my soapbox. As for you, just do your own research. Have your own facts. If anyone questions you or says your wrong, present the facts. If they still have a problem then just kindly change the subject and move on.
Curious posted Oct.16th, 2004, 12:28:59 pm5/5
Tell them to do real research on the subject. Ask them if they can find bonafide scientific research on the benifits of gluten free diets. Tell them to check out a scientific area on
tomatis at http://www.vanderbilt.edu/AnS/psychology/health_psychology/TOMATIS.html
Let them decide for themselves.


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